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Congenital Database Publications

  1. Mavroudis C and Jacobs JP (editors). International Congenital Heart Surgery Nomenclature and Database Project. The Annals of Thoracic Surgery 69:S1: 1-372, April 2000 Supplement.
  2. Mavroudis C, Jacobs JP. Congenital Heart Surgery Nomenclature and Database Project: Overview and Minimum Dataset. The Annals of Thoracic Surgery April 2000 Supplement, The Annals of Thoracic Surgery, 69 (4 Suppl.):S2-17, April 2000.
  3. Lacour-Gayet F, Maruszewski B, Mavroudis C, Jacobs JP, Elliott MJ. Presentation of the International Nomenclature for Congenital Heart Surgery - The Long Way from Nomenclature to Collection of Validated Data at the EACTS. European Journal of Cardiothoracic Surgery, 18(2):128-135, August 2000.
  4. Maruszewski B, Lacour-Gayet F, Elliott MJ, Gaynor JW, Jacobs JP, Jacobs ML, Tchervenkov CI, Kurosawa H, Mavroudis C. Congenital Heart Surgery Nomenclature And Database Project: Update And Proposed Data Harvest. For simultaneous publication: The Annals of Thoracic Surgery 2002, The European Journal of Cardio-thoracic Surgery 2002, and The Jpn J Thorac Cardiovasc Surg 2002. The European Journal of Cardio-thoracic Surgery, 21(1):47-9, January 2002.
  5. Mavroudis C, Gevitz M, Elliott MJ, Jacobs JP, Gold JP. Virtues of a Worldwide Congenital Heart Surgery Database. 2002 Seminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual, 5(1):126-131, January 2002.
  6. Jacobs JP. Software Development, Nomenclature Schemes, and Mapping Strategies for an International Pediatric Cardiac Surgery Database System. 2002 Seminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual, 5(1):153-62, January 2002.
  7. Franklin RCG, Jacobs JP, Tchervenkov CI, Beland M. European Pediatric Cardiac Code Short List crossmapped to STS/EACTS Short List with ICD-9 & ICD-10 crossmapping. Cardiology in the Young, (Suppl. II) 23-49, September 2002.
  8. Franklin RCG, Jacobs JP, Tchervenkov CI, Beland M. STS/EACTS Short List mapping to European Pediatric Cardiac Code Short List with ICD-9 & ICD-10 crossmapping. Cardiology in the Young, (Suppl. II) 50-62, September 2002.
  9. Franklin RCG, Jacobs JP, Tchervenkov CI, Beland MJ. Bidirectional crossmap of the Short Lists of the European Pediatric Cardiac Code and the International Congenital Heart Surgery Nomenclature and Database Project. Cardiol Young. 2002 Oct; 12(5):431-5.
  10. Lacour-Gayet F. Risk stratification theme for congenital heart surgery. Semin Thorac Cardiovasc Surg Pediatr Card Surg Ann. 2002;5:148-52.
  11. Jacobs JP. Software Development, Nomenclature Schemes, and Mapping Strategies for an International Pediatric Cardiac surgery database system. Semin Thorac Cardiovasc Surg Pediatr Card Surg Ann. 2002;5:153-62.
  12. Gaynor JW. Jacobs JP. Jacobs Me Elliott MJ. Lacour-Gayet F. Tchervenkov CI, Maruszewski B. Mavroudis C; International Congenital Heart Surgery Nomenclature and Database Project. Congenital Heart Surgery Committees of the Society of Thoracic Surgeons. European Association for Cardio- Thoracic Surgery. Congenital Heart Surgery Nomenclature and Database Project: update and proposed data harvest. Ann Thorac Surg. 2002 Mar;73(3):1016-8.
  13. Mavroudis C, Jacobs JP. Congenital heart disease outcome analysis: methodology and rationale. J Thorac Cardiovasc Surg. 2002 Jan; 123(1):6-7.
  14. Lacour-Gayet FG, Clarke D, Jacobs JP, Gaynor JW, Hamilton L, Jacobs ML, Maruszewski B, Pozzi M, Spray T, Tchervenkov CI, Mavroudis C, and the Aristotle Committee. The Aristotle Score for Congenital Heart Surgery. 2004 Seminars in Thoracic and Cardiovascular Surgery: Pediatric Cardiac Surgery Annual, 7:185 – 191, 2004.
  15. Lacour-Gayet FG, Clarke D, Jacobs JP, Comas J, Daebritz S, Daenen W, Gaynor JW, Hamilton L, Jacobs ML, Maruszewski B, , Pozzi M, Spray T, Stellin G, Tchervenkov CI, Mavroudis C, and the Aristotle Committee. The Aristotle Score: A Complexity-Adjusted Method to Evaluate Surgical Results. The European Journal of Cardio-thoracic Surgery, 25(6):911-924, June 2004.
  16. Jacobs JP, Mavroudis C, Jacobs ML, Lacour-Gayet FG, Tchervenkov CI, Gaynor JW, Clarke DR, Spray TL, Maruszewski B, Stellin G, Elliott MJ, Dokholyan RS, Peterson ED. Lessons Learned From The Data Analysis Of The Second Harvest (1998-2001) Of The Society Of Thoracic Surgeons (STS) Congenital Heart Surgery Database. The European Journal of Cardio-thoracic Surgery, 26(1):18-37, July 2004.
  17. Beland MJ. Franklin Re. Jacobs JP. Tchervenkov CI. Aiello VD. Colan SD. Gaynor JW. Krogmann ON. Kurosawa H, Maruszewski B, Stellin G, Weinberg PM. Update from the International Working Group for Mapping and Coding of Nomenclatures for Pediatric and Congenital Heart Disease. Cardiol in the Young. 2004 Apr;14(2):225-9.
  18. Jacobs JP, Maruszewski B, Tchervenkov CI, Lacour-Gayet FG, Jacobs ML, Clarke DR, Gaynor JW, Spray TL, Stellin G, Elliot MJ, Ebels T, Franklin RCG, Beland MJ, Kurosawa H, Aiello VD, Colan SD,. Krogmann ON, Weinberg P, Tobota Z, Dokholyan RS, Peterson ED, Mavroudis C. The Current Status and Future Directions of Efforts to create a Global Database for the Outcomes of Therapy for Congenital Heart Disease. In 2005 Supplement to Cardiology in the Young: Controversies of the Ventriculo-Arterial Junctions and Other Topics, Jacobs JP, Wernovsky G, Gaynor JW, and Anderson RH, editors. Cardiology in the Young, Volume 15, Supplement 1: 190 - 198, February 2005.
  19. Jacobs JP, Lacour-Gayet FG, Jacobs ML, Clarke DL, Tchervenkov CI, Gaynor JW, Spray TL, Maruszewski B, Stellin G, Gould J, Dokholyan RS, Peterson ED, Elliott MJ, Mavroudis C. Initial application in the STS congenital database of the complexity adjustment to evaluate surgical case mix and results. Ann Thorac Surg. 2005 May; 79(5): 1635-49; discussion 1635-49
  20. Jacobs JP, Maruszewski B, and The European Association for Cardio-Thoracic Surgery (EACTS) and The Society of Thoracic Surgeons (STS) Joint Congenital Heart Surgery Nomenclature and Database Committee. Computerized outcomes analysis for congenital heart disease. Current Opinion in Pediatrics, 2005 Oct;17(5):586-91.
  21. Jacobs JP, Jacobs ML, Maruszewski B, Lacour-Gayet FG, Clarke DR, Tchervenkov CI, Gaynor JW, Spray TL, Stellin G, Elliott MJ, Ebels T, Mavroudis C. Current status of the European Association for Cardio-Thoracic Surgery and the Society of Thoracic Surgeons Congenital Heart Surgery Database. Ann Thorac Surg. 2005 Dec;80(6):2278-83; discussion 2283-4.
  22. B.Maruszewski, F.Lacour-Gayet, J.L.Monro, B.E.Keogh, Z.Tobota, A.Kansy “An attempt at data verification in EACTS Congenital Database” The European Journal of Cardio-thoracic Surgery, 28:400-406, Sept. 2005
  23. B.Maruszewski, Z.Tobota, A.Kansy, F.Lacour-Gayet, J.P.Jacobs, D.Clark, M.Elliott “The Aristotle Score methodology for evaluation of outcomes in Congenital Heart Surgery” Patient safety as European challenge, Medical standards, Supl.22, Vol.7, 29-33, 2005
  24. Jacobs ML. Editorial Comment. Eur J Cardiothorac Surg. 2005 Sep;28(3):405-6.
  25. Lacour-Gayet FG, Jacobs JP, Clarke DR, Gaynor JW, Jacobs ML. Anderson RH, Elliott MJ, Maruszewski B, Vouhe P, Mavroudis C. Performance of surgery for congenital heart disease: shall we wait a generation or look for different statistics? J Thorac Cardiovasc Surg. 2005 Jul;130(1):234-5.
  26. Lacour-Gayet F, Clarke DR; Aristotle Committee. The Aristotle method: a new concept to evaluate quality of care based on complexity. Curr Opin Pediatr. 2005 Jun;17(3):412-7.
  27. Welke KF, Jacobs JP, Jenkins KJ. Evaluation of quality of care for congenital heart disease. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2005;:157-67.
  28. Jacobs JP, Mavroudis C, Jacobs ML, Maruszewski B, Tchervenkov CI, Lacour-Gayet FG, Clarke DR, Yeh T, Walters HL 3rd, Kurosawa H, Stellin G, Ebels T, Elliott MJ. What is the Operative Mortality? Defining Death in a Surgical Registry Database: A Report of the STS Congenital Database Taskforce and Joint EACTS-STS Congenital Database Committee. The Annals of Thoracic Surgery, 81(5):1937-41, May 2006.
  29. What is operative morbidity? Defining complications in a surgical registry database. Authors: Jacobs J.P., Jacobs M.L., Mavroudis C., Maruszewski Bohdan, Tchervenkov C.I., Lacour-Gayet F., Clarke D.R., Yeh, T., Walters H.L., Kurosawa H., Stellin G., Ebels T., Elliott M.J., Vener D.F., Barach P., Benavidez O., Bacha E.A. Ann.Thorac.Surg. 2007 Vol.84 s. 1416-1421
  30. Nomenclature and databeses - The past, the present, and the future: A primer for the congenital heart surgeon. Authors: Jacobs J.P., Mavroudis C., Jacobs M.L., Maruszewski Bohdan, Tchervenkov C.I., Lacour-Gayet F., Clarke D.R., Gaynor J.W., Spray T.L., Kurosawa H., Stellin G., Ebels T., Bacha E.A., Walters H.L., Elliott M.J. Pediatr.Cardiol. 2007 Vol. 28 nr 2 s. 105-115
  31. Evaluation of the quality of care in congenital heart surgery: contribution of the aristotle complexity score. Authors: Lacour-Gayet F., Jacobs J.P., Clarke D.R., Maruszewski Bohdan, Jacobs M.L., O'Brien S.M., Mavroudis C.. In: Advances in Pediatrics, ed. M.S. Kappy, E.Gilbert-Barness, L.A.Barness, L.L.Barton, M.Ziegler. Wyd. Elsevier An Unorubt if /elsevier, Inc. Philadelphia, London, Toronto, Montreal, Sydney, Tokyo 2007 Vol. 54 s. 67-83
  32. O'Brien SM, Jacobs JP, Clarke DR, Maruszewski B, Jacobs ML, Walters HL 3rd, Tchervenkov CI, Welke KF, Tobota Z, Stellin G, Mavroudis C, Hamilton JR, Gaynor JW, Pozzi M, Lacour-Gayet FG. Accuracy of the Aristotle Basic Complexity score for classyfying the mortality and morbidity potential of congenital heart surgery operations. Ann Thorac Surg. 2007 Dec; 84(6):2027-37, PMID: 18036930.
  33. Clarke DR, Breen LS, Jacobs ML, Franklin RCG, Tobota Z, Maruszewski B, Jacobs JP. Verification of data in congenital cardiac surgery. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD (editor). Cardiology in the Young. 2008 Dec 9; 18(Suppl 2):177–187.
  34. Clarke DR, Lacour-Gayet F, Jacobs JP, Jacobs ML, Maruszewski B, Pizarro C, Edwards FH, Mavroudis C. The assessment of complexity in congenital cardiac surgery based on objective data. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD (editor). Cardiology in the Young. 2008 Dec 9; 18(Suppl 2):169–176.
  35. Vener DF, Jacobs JP, Schindler E, Maruszewski B, Andropoulos D. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of anaesthesia. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD (editor). Cardiology in the Young. 2008 Dec 9; 18(Suppl 2):124–129.
  36. Jacobs ML, Jacobs JP, Franklin RCG, Mavroudis C, Lacour-Gayet F, Tchervenkov CI, Walters III H, Bacha EA, Clarke DR, Gaynor JW, Spray TL, Stellin G, Ebels T, Maruszewski B, Tobota Z, Kurosawa H, Elliott M. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of cardiac surgery. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD. Card. in the Young. 2008 Dec 9; 18(Suppl 2):101–115.
  37. Franklin RCG, Jacobs JP, Krogmann ON, Béland MJ, Aiello VD, Colan SD, Elliott MJ, Gaynor JW, Kurosawa H, Maruszewski B, Stellin G, Tchervenkov CI, Walters HL 3rd, Weinberg P, Anderson RH. Nomenclature for congenital and paediatric cardiac disease: Historical perspectives and The International Pediatric and Congenital Cardiac Code. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD (editor). Cardiology in the Young. 2008 Dec 9; 18(Suppl 2):70–80.
  38. Tchervenkov CI, Jacobs JP, Bernier P-L, Stellin G, Kurosawa H, Mavroudis C, Jonas RA, Cicek SM, Al-Halees Z, J. Elliott MJ, Jatene MB, Kinsley RH, Kreutzer C, Leon-Wyss J, Liu J, Maruszewski B, Nunn GR, Ramirez-Marroquin S, Sandoval N, Sano S, Sarris GE, Sharma R, Shoeb A, Spray TL, Ungerleider RM, Yangni-Angate H, Ziemer G. The improvement of care for paediatric and congenital cardiac disease across the World: a challenge for the World Society for Pediatric and Congenital Heart Surgery. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD (editor). Cardiology in the Young. 2008 Dec 9; 18(Suppl 2):63–69.
  39. Jacobs JP, Jacobs ML, Mavroudis C, Backer CL, Lacour-Gayet FG, Tchervenkov CI, Franklin RCG, Béland MJ, Jenkins KJ, Walters III H, Bacha EA, Maruszewski B, Kurosawa H, Clarke DR, Gaynor JW, Spray TL, Stellin G, Ebels T, Krogmann ON, Aiello VD, Colan SD, Weinberg P, Giroud JM, Everett A, Wernovsky G, Martin J. Elliott MJ, Edwards FH. Nomenclature and databases for the surgical treatment of congenital cardiac disease – an updated primer and an analysis of opportunities for improvement. In: 2008 Supplement to Cardiology in the Young: Databases and The Assessment of Complications associated with The Treatment of Patients with Congenital Cardiac Disease, Prepared by: The Multi-Societal Database Committee for Pediatric and Congenital Heart Disease, Jeffrey P. Jacobs, MD (editor). Cardiology in the Young. 2008 Dec 9; 18(Suppl 2):38–62
  40. O'Brien SM, Clarke DR, Jacobs JP, Jacobs ML, Lacour-Gayet FG, Pizarro C, Welke KF, Maruszewski B, Tobota Z, Miller WJ, Hamilton L, Peterson ED, Mavroudis C, Edwards FH. An empirically based tool for analyzing mortality associated with congenital heart surgery. J ThoracCardiovasc Surg. 2009 Nov; 138(5):1139-53. PMID: 19837218.
  41. Jacobs JP, Jacobs ML, Lacour-Gayet FG, Jenkins KJ, Gauvreau K, Bacha E, Maruszewski B, Clarke DR, Tchervenkov CI, Gaynor JW, Spray TL, Stellin G, O'Brien SM, Elliott MJ, Mavroudis C. Stratification of complexity improves the utility and accuracy of outcomes analysis in a Multi-Institutional Congenital Heart Surgery Database: Application of the Risk Adjustment in Congenital Heart Surgery (RACHS-1) and Aristotle Systems in the Society of Thoracic Surgeons (STS) Congenital Heart Surgery Database. PediatrCardiol. 2009; 30:1117–1130, DOI 10.1007/s00246-009-9496-0
  42. Jacobs JP, Maruszewski B, Kurosawa H, Jacobs ML, Mavroudis C, Lacour-Gayet FG, Tchervenkov CI, Walters H 3rd, Stellin G, Ebels T, Tsang VT, Elliott MJ, Murakami A, Sano S, Mayer JE Jr, Edwards FH, Quintessenza JA.Congenital heart surgery database around the world: do we need a global database?SeminThoracCardiovascSurgPediatr Card SurgAnnu. 2010; 13(1):3-19. PMID: 20307856.
  43. Analysis of 14,843 Neonatal Congenital Heart Surgical Procedures in the European Association for Cardiothoracic Surgery Congenital Database, Andrzej Kansy, Zdzislaw Tobota, PrzemyslawMaruszewski and BohdanMaruszewski, Ann ThoracSurg 2010;89:1255-1259, DOI: 10.1016/j.athoracsur.2010.01.003
  44. Jacobs JP, Jacobs ML, Mavroudis C, Maruszewski B, Lacour-Gayet FG, Tchervenkov CI. A correction to an analysis from the EACTS and STS Cong. Heart Surgery Databases. Ann Thorac Surg. 2010 Apr; 89(4):1339
  45. Jacobs JP, Jacobs ML, Maruszewski B, Lacour-Gayet FG, Tchervenkov CI, Tobota Z, Stellin G, Kurosawa H, Murakami A, Gaynor JW, Pasquali SK, Clarke DR, Austin EH 3rd, Mavroudis C. Initial application in the EACTS and STS Congenital Heart Surgery Databases of an empirically derived methodology of complexity adjustment to evaluate surgical case mix and results. Eur J Cardiothorac Surg. 2012 Nov;42(5):775-80. doi: 10.1093/ejcts/ezs026. Epub 2012 Jun 14. PMID: 22700597.
  46. Kansy A, Jacobs JP, Pastuszko A, Mirkowicz-Ma³ek M, Manowska M, Jezierska E, Maruszewski P, Burczyñski P, Maruszewski B. Major infection after pediatric cardiac surgery: external validation of risk estimation model. Ann Thorac Surg. 2012 Dec;94(6):2091-5.
  47. Eur. J. Cardiothorac. Surg. 2012 Nov;42(5):766-74; discussion 774. doi: 10.1093/ejcts/ezs478. Results of reparative surgery for tetralogy of Fallot: data from the European Association for Cardio-Thoracic Surgery Congenital Database. Sarris GE, Comas JV, Tobota Z, Maruszewski B.
  48. Jacobs JP and Maruszewski M. Functionally Univentricular Heart and the Fontan Operation: Lessons Learned About Patterns of Practice and Outcomes From the Congenital Heart Surgery Databases of the European Association for Cardio-Thoracic Surgery and the Society of Thoracic Surgeons. The World Journal for Pediatric and Congenital Heart Surgery. October 2013 4: 349-355, doi:10.1177/2150135113494228.
  49. Kansy A, Maruszewski B, Jacobs JP, Maruszewski P. Application of four complexity stratification tools (Aristotle Basic Score, RACHS-1, STAT Mortality Score, and STAT Mortality Categories) to evaluate early congenital heart surgery outcomes over 16 years at a single institution. Kardiochirurgiai TorakochirurgiaPolska 2013; 10 (2): 115–119. DOI (digital object identifier): 10.5114/kitp.2013.36129.
  50. Application of four complexity stratification tools (Aristotle Basic Score, RACHS-1, STAT Mortality Score, and STAT Mortality Categories) to evaluate early congenital heart surgery outcomes over 16 years at a single institution. Andrzej Kansy, Bohdan Maruszewski, J.P. Jacobs, Przemysław Maruszewski. Kardiochir.Torakochir.Pol. 2013 : Vol. 10, Nr 2, s. 115-119
  51. Association of Center Volume With Outcomes: Analysis of Verified Data of European Association for Cardio-Thoracic Surgery Congenital Database, Andrzej Kansy, MD, PhD, TjarkEbels, MD, PhD, Christian Schreiber, MD, PhD, ZdzislawTobota, MD, and BohdanMaruszewski, MD, PhD, (Ann ThoracSurg 2014;) 2014 by The Society of Thoracic Surgeons
  52. Higher Volume Load in Congenital Heart Surgery is Associated with Better Early Outcomes, Authors: A. Kansy, T. Ebels, C. Schreiber, J.P. Jacobs, Z. Tobota, B. Maruszewski, 28 th EACTS Annual Meeting. Milan, Italy 11-15 October 2014